Disability rights movement


The disability rights movement is a global social movement, which seeks to secure equal opportunities and equal rights for all disabled people. It is made up of organizations of disability activists, also known as disability advocates, around the world working together with similar goals and demands, such as accessibility and safety in architecture, transportation, and the physical environment; equal opportunities in independent living, employment equity, education, and housing; and freedom from discrimination, abuse, neglect, and from other rights violations.
Disability activists are working to break institutional, physical, and societal barriers that prevent people with disabilities from living their lives like other citizens. Disability rights is complex because there are multiple ways in which a disabled person can have their rights violated in different socio-political, cultural, and legal contexts. For example, a common barrier that disabled individuals face deals with employment. Specifically, employers are often unwilling or unable to provide the necessary accommodations to enable disabled individuals to effectively carry out their job functions.

History

United States

American disability rights have evolved significantly over the past century. Before the disability rights movement, President Franklin D. Roosevelt's refusal to be publicized using his wheelchair demonstrated and symbolized the existing stigma surrounding disabilities. While campaigning, giving speeches, or acting as a public figure, he hid his disability. This perpetuated the ideology that "disability equates to weakness".
Disability in the United States was viewed as a personal issue, and not many political or governmental organizations existed to support individuals in these groups. In the 1950s, there was a transition to volunteerism and parent-oriented organizations, such as the March of Dimes. While this was the beginning of activism and seeking support for these groups, disabled children were largely hidden by their parents out of fear of forced rehabilitation.
When the civil rights movement took off in the 1960s, disability advocates joined it and the women's rights movements in order to promote equal treatment and challenge stereotypes. It was at this time that disability rights advocacy began to have a cross-disability focus. People with different kinds of disabilities and different essential needs came together to fight for a common cause. It was not until 1990 that the Americans with Disabilities Act was passed, legally prohibiting discrimination on account of disability, and mandating disability access in all buildings and public areas. The ADA is historically significant in that it defined the meaning of reasonable accommodation in order to protect employees and employers.

United Nations

On a global scale, the United Nations has established the Convention on the Rights of Persons with Disabilities, specifically discussing indigenous people with disabilities.

Issues

People with intellectual and developmental disabilities

People with intellectual and developmental disabilities focus their efforts on ensuring that they have the same human rights as other people and that they are treated like human beings. Since the formation of the self advocacy movement in the 1960s, the largest focus of the movement has been to get people with I/DD out of institutions and into the community. Another main focus is ensuring that people with intellectual and developmental disabilities are in integrated workplaces that pay at least minimum wage. In the US, it is still legal to pay people with I/DD below minimum wage in sheltered workshops. Many people with intellectual and developmental disabilities are put under guardianship and are not allowed to make their own decisions about their lives.
Another issue is the continued dehumanization of people with intellectual and developmental disabilities, which prompted the slogan People First, still used as a rallying cry and a common organizational name in the self advocacy movement. Self advocates are also involved in the "R-Word" Campaign, in which they try to eliminate the use of the word "retard". Self advocates successfully advocated to change the name of the Arc.

Autism rights movement

The autism rights movement is a social movement that emphasizes the concept of neurodiversity, viewing the autism spectrum as a result of natural variations in the human brain rather than a disorder to be cured. The autism rights movement advocates for several goals, including greater acceptance of autistic behaviors; therapies that focus on coping skills rather than imitating the behaviors of neurotypical peers; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.
Autism rights or neurodiversity advocates believe that the autism spectrum is primarily genetic and should be accepted as a natural expression of the human genome. This perspective is distinct from two other views: the medical perspective that autism is caused by a genetic defect and should be addressed by targeting the autism gene, and fringe theories that autism is caused by environmental factors such as vaccines. The movement is controversial. A common criticism against autistic activists is that the majority of them are "high-functioning" or have Asperger syndrome and do not represent the views of "low-functioning" autistic people.

People with mental health issues

Advocates for the rights of people with mental health disabilities focus mainly on self-determination, and an individual's ability to live independently. The right to have an independent life, using paid assistant care instead of being institutionalized, if the individual wishes, is a major goal of the disability rights movement, and is the main goal of the similar independent living and self-advocacy movements, which are most strongly associated with people with intellectual disabilities and mental health disorders. These movements have supported people with disabilities to live as more active participants in society.

Freedom from discrimination and abuse

Freedom from abuse, neglect, and violations of a person's rights are also important goals of the disability rights movement. Abuse and neglect includes inappropriate seclusion and restraint, inappropriate use of force by staff and/or providers, threats, harassment and/or retaliation by staff or providers, failure to provide adequate nutrition, clothing, and/or medical and mental health care, and/or failure to provide a clean and safe living environment, as well as other issues which pose a serious threat to the physical and psychological well-being of a person with a disability. Violations of patients' rights include failure to obtain informed consent for treatment, failure to maintain the confidentiality of treatment records, and inappropriate restriction of the right to communicate and associate with others, as well as other restrictions of rights. As a result of the work done through the disability rights movement, significant disability rights legislation was passed in the 1970s through the 1990s in the U.S.

Major events

Australia

In 1978 protests outside Australia's Parliament House in Canberra helped force the government to rescind taxes on government payments to people with disability. Demonstrations inside and outside parliament since been held regarding various issues, leading to an expansion of the National Attendant Care Scheme in 1992 and helping to convince the federal government to establish the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability in 2019. Similar protests outside state parliaments have fed into campaigns for improved rights and funding, leading to improvements in supported accommodation in New South Wales in 1994 and continued support for Queensland disability advocacy services in 2021.
Beginning in 1981, the International Year of the Disabled Person, campaigners targeted beauty pageants such as the Miss Australia Quest in order to, in the words of activist Leslie Hall, "challenge the notion of beauty" and "reject the charity ethic." High profile demonstrations led to some charities abandoning their use of such contests for fundraising and also saw some remove offensive language from their organisational titles. Following a long nationwide campaign involving hundreds of thousands of people the National Disability Insurance Scheme was introduced in Australia in 2013 to fund a number of supports. National campaigns by groups such as Every Australian Counts have since been launched to extend the scheme and protect it from cuts and restrictions on access.

Canada

Canada's largest province, Ontario, created legislation, Accessibility for Ontarians with Disabilities Act, 2005, with the goals of becoming accessible by 2025. In 2019, the Accessible Canada Act became law. This is the first national Canadian legislation on accessibility that affects all government departments and federally regulated agencies.

India

The Rights of Persons with Disabilities Act, 2016 is the disability legislation passed by the Indian Parliament to fulfill its obligation to the United Nations Convention on the Rights of Persons with Disabilities, which India ratified in 2007. The Act replaced the existing Persons With Disabilities Act, 1995. It came into effect on 28 December 2016. This law recognizes 21 disabilities.

United Kingdom

In the United Kingdom, following extensive activism by people with disabilities over several decades, the Disability Discrimination Act 1995 was passed. This made it unlawful in the United Kingdom to discriminate against people with disabilities in relation to employment, the provision of goods and services, education and transport. The Equality and Human Rights Commission provides support for this Act. Equivalent legislation exists in Northern Ireland, which is enforced by the Northern Ireland Equality Commission.
Following the introduction of the Bedroom Tax in the Welfare Reform Act 2012, disability activists have played a significant role in the development of Bedroom Tax protests. A wide range of benefit changes are estimated to affect disabled people disproportionately and to compromise disabled people's right to independent living. The Down Syndrome Bill, created by Evan Mitchell OBE, will provide legal recognition to people living with Down syndrome.